Since being discharged from cchmc in December, we spent 10 days at the hotel in downtown Cincinnati until cleared to go home. We had Eli's first Christmas at home together as a family. This was by far one of the most rewarding things to us. If you would have said we would be spending Christmas in our own home back in July, i would have laughed at you.
Eli had his second biopsy December 26. All results came back 0 which is fantastic. He had some feeding issues shortly after but got himself back on track quickly.
The new year has brought great hope and excitement for our family. As hard, amazing and memorable 2013 was we are so happy to see it go. Many triumphs and tribulations were experienced and we feel like we overcame so many things. Eli was a blessing. We don't ever want to forget the gift of life was given to us but it also brought a lot of hurt, and sadness and struggle. So 2014 will be our year. The year we celebrate our family as 4.
I was let go from my position at UC in November. I had just celebrated 6 years. Unfortunately the unit got funding cuts and my position was the first to go. Call it what you may but I was offered a position down the hall in our clinic. I will be there starting in February 4 days a week and continuing to work for the university. I am excited to remain with these people. They have been there for me through everything. From marriages to babies and now all of Eli's medical issues. I am so blessed.
Lucas will be turning 3 in March. Yeah, I just threw up a little bit in my mouth. How is this even possible. He's our baby! Growing so fast and learning so much. He's been a huge trooper through all of this with Eli and I am so proud of him. He has suffered so much in this journey. Being away from his parents for days on days and shuffled between grandparents is not fair. Everyday I pray that Lucas will one day understand why we had to do what we did. He's an amazing big Brother and I can't wait to have them grow up and be best friends.
Danny and I have worked out a schedule so that when I return to work we will not have to take the boys into any daycare or pay for childcare. I will work 7-3:30 with Wednesday off for Eli's appointments and Danny will work 4-10. I will pick both boys up from him on my way home from work. We are hoping this schedule will work until Eli can be cared for outside of Danny and myself. One day.
So that's what's going on over here. Enjoying life at home as a family of 4, finally!
