Monday, March 18, 2013

Half a heart.

As We left the hospital We couldn't help but start thinking how life would be after July. We were told that for this child's first 6 weeks of life, We would be at children's hospital day and night. Spending maternity leave on a cot in the nicu. Spending lunches visiting our baby until strong enough to go home w chest tubes and big bottles of medicine. Only to return in 3 months for another surgery, given baby makes it out of the first.

Am I strong enough of a mom, woman to be able to do this?!

Questions have piled through our brain. We cannot answer many of them as no one can for Us. We just don't know what's going to happen. We have an insight but no real way of knowing if this baby will even make it out of surgery ok, back to the 2nd surgery or live to be a certain age.

We do know baby has HLHS. AKA half a heart. Baby will need 3 surgeries. Today showed that in fact baby does not have the left side of the heart working. The right side is doing all the work and will need to be reconstructed after birth and 2 surgeries follow.

Three options were given to us. Each one playing a role in our head and trying to decide which is best for me as a mother, and our family. We can't make a decision today but it's on limited time. I think having the support and love We do have, has helped us be strong enough through this process so far that I know We are able to make the right choice.

Please continue to pray for our family. God bless. ❤🙏



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